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WEBINAR: ARE YOU PREPARED FOR PREPARE-NS?
Innovations in Clinical Outcomes Assessments for Nephrotic Syndrome Patients
January 25, 2024 | Noon–1 pm EST
WATCH REPLAY
Learn about patient-focused drug development, clinical outcomes assessments, the Prepare-NS study, and how you can help advance patient-centered outcomes.
ADVANCING PATIENT-CENTERED OUTCOMES IN NEPHROTIC SYNDROME
Edema is both terribly burdensome and an indicator of progressive disease, yet it is not commonly captured in clinical trials for nephrotic syndrome-causing conditions. By developing health questionnaires focused on edema impacts, Prepare-NS is at the forefront of advancing patient-centered outcomes in nephrotic syndrome treatments.
Join us for this webinar to learn about the pioneering efforts of the FDA-funded Prepare-NS study, which is focused on the development of patient-reported and caregiver-reported questionnaires to measure impacts of edema. You will hear from patients on their lived experience with edema alongside commentary from experts in pediatric and adult nephrology and patient-focused drug development.
At the end of this webinar, participants will be familiar with emerging, patient-focused approaches to capturing edema related to nephrotic syndrome for use in clinical trials. There will also be an opportunity to engage in a discussion about patients’ and caregivers’ experiences with edema related to nephrotic syndrome and how those experiences can be leveraged to improve nephrotic syndrome care.
PRESENTERS
She is a member of ISGD's Clinical Trials Committee, has served on the Kidney Health Initiative Board of Directors, and is a leader on numerous other workgroups, advisory boards, and steering committees throughout the nephrology landscape.
Dr. Salmon is a pediatric nephrologist who treats patients with a range of kidney care needs, including dialysis and transplant. She completed her residency and fellowship training at the Children’s Hospital of Philadelphia. Within Prepare-NS, Dr. Salmon provides leadership of the stakeholder engagement activities, serves as the liaison with the NIH-sponsored consortia NEPTUNE and CureGN, and leads the implementation of multi-site study procedures leveraging the NEPTUNE and CureGN infrastructure during the UH3 phase. She is co-PI with Devin Peipert.
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"The doctors of tomorrow will have tools at their disposal unlike any before in human history…
Yet every day that goes by where these tools are not realized is a day that patients and their families have to struggle through the pain and suffering of their condition."