WEBINAR: ARE YOU PREPARED FOR PREPARE-NS?
Innovations in Clinical Outcomes Assessments for Nephrotic Syndrome Patients
January 25, 2024 | Noon–1 pm EST
ADVANCING PATIENT-CENTERED OUTCOMES IN NEPHROTIC SYNDROME
Edema is both terribly burdensome and an indicator of progressive disease, yet it is not commonly captured in clinical trials for nephrotic syndrome-causing conditions. By developing health questionnaires focused on edema impacts, Prepare-NS is at the forefront of advancing patient-centered outcomes in nephrotic syndrome treatments.
Join us for this webinar to learn about the pioneering efforts of the FDA-funded Prepare-NS study, which is focused on the development of patient-reported and caregiver-reported questionnaires to measure impacts of edema. You will hear from patients on their lived experience with edema alongside commentary from experts in pediatric and adult nephrology and patient-focused drug development.
At the end of this webinar, participants will be familiar with emerging, patient-focused approaches to capturing edema related to nephrotic syndrome for use in clinical trials. There will also be an opportunity to engage in a discussion about patients’ and caregivers’ experiences with edema related to nephrotic syndrome and how those experiences can be leveraged to improve nephrotic syndrome care.
She is a member of ISGD's Clinical Trials Committee, has served on the Kidney Health Initiative Board of Directors, and is a leader on numerous other workgroups, advisory boards, and steering committees throughout the nephrology landscape.
Dr. Salmon is a pediatric nephrologist who treats patients with a range of kidney care needs, including dialysis and transplant. She completed her residency and fellowship training at the Children’s Hospital of Philadelphia. Within Prepare-NS, Dr. Salmon provides leadership of the stakeholder engagement activities, serves as the liaison with the NIH-sponsored consortia NEPTUNE and CureGN, and leads the implementation of multi-site study procedures leveraging the NEPTUNE and CureGN infrastructure during the UH3 phase. She is co-PI with Devin Peipert.
"The doctors of tomorrow will have tools at their disposal unlike any before in human history…
Yet every day that goes by where these tools are not realized is a day that patients and their families have to struggle through the pain and suffering of their condition."