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ISGD @ PAEDIATRIC KIDNEY WEEK 2024

From September 25–27 at ISGD's Booth #8 in the Exhibition Hall

ASK THE EXPERTS

Visit our booth in the Exhibition Hall to chat with ISGD-affiliated experts in glomerular diseases! These are informal one-on-one conversations open to all, and there is no need to register in advance.

Bring your questions about research, difficult cases, clinical trials, career advice, and anything else in nephrology.  The collective experience of these international leaders includes conducting groundbreaking basic, translational and clinical research, establishing interdisciplinary kidney health centers, securing multimillion-euro grants for kidney research, leading fellowship programs, and starting national and international networks to support paediatric clinical trials — as well as providing outstanding care to their own patients. 

  • Wednesday, Sep. 25
  • Thursday, Sep. 26
  • Friday, Sep. 27

15:30–16:30

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Tobias B. Huber, MD and William E. Smoyer, MD

University of Hamburg / UKE (Germany) | Nationwide Children's Hospital / Ohio State University (US)

podocyte biology • anti-nephrin antibodies • clinical trials • biobanking & registries • minimal change disease • podocytopathies • research consortia • learning health systems • translational platforms

9:00–10:00

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Gabriel Cara Fuentes, MD

Nationwide Children's Hospital (US); The Ohio State University
US/EU collaborations in glomerular disease •  Translational research in idiopathic nephrotic syndrome

10:30–11:30

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Eugene Chan, MD

Chinese University of Hong Kong; Hong Kong Children's Hospital

biologics for nephrotic syndrome • lupus nephritis • onconephrology

12:00–13:00

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Jun Oh, MD

University Medical Center Hamburg-Eppendorf (Germany)

transplant immunology • clinical trials • glomerular biology • complement-related diseases

15:00–16:00

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Louise Oni, MBChB, MRCPCH, MA, PhD

University of Liverpool; Alder Hey Children's Hospital (UK)

academic careers in paediatric nephrology • clinical trials • translational research • glomerulonephritis

16:00–17:00

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Antonia Bouts, MD

University of Amsterdam; Emma Children’s Hospital (Netherlands)

kidney transplantation • nephrotic syndrome • post-transplant recurrence

9:30–10:30

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Francesco Emma, MD

Bambino Gesù Children’s Hospital, Rome (Italy)

rare kidney diseases • nephrotic syndrome • cystinosis

10:30–11:30

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Laurence Greenbaum, MD, PhD

Emory University (Atlanta, US)

minimal change disease • FSGS • steroid-sensitive and steroid-resistant nephrotic syndrome •
clinical trials • patient education • paediatric to adult care transition

PAEDIATRIC TRIALS: THE BIG CONVERSATION

Wednesday, Sep. 25 | 12:50–13:50
Breakout Room 1 | Lunch will be provided
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We all want better medicines for children affected by kidney disease, although the road to get there may be challenging. You are invited to join clinicians, industry representatives, and patient advocates for an interactive discussion and whiteboarding session about clinical trials in paediatric nephrology. Bring your ideas and questions, and be prepared to talk about your experience!

Topics will include:

  • The current landscape of kidney disease clinical trials in paediatrics
  • Particular needs in paediatric rare kidney disease trials
  • How to include children in trials: success stories and lessons learned
  • Integrating clinical trials into everyday practice: challenges and solutions
  • Challenges in patient access and ideas for overcoming them
  • Clinical trialist training needs and resources
  • EU-wide and international trial networks & patient registries
  • Other ideas and concerns you bring to the table

Hosted by ESPN, ISGD, NephCure, and PNRC. All are welcome. However, space is limited; please register below.
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REGISTER TO JOIN THE CONVERSATION

An assortment of Spanish-style snacks

ISGD RECEPTION

Wednesday, Sep. 25 | 17:00-18:00
Breakout Room 1 | Light refreshments
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Join us to mingle with other glomerular disease enthusiasts, meet leaders of the International Society of Glomerular Disease, and learn more about ISGD projects and programs.

All are welcome. However, space is limited; please register in advance.