CONTACT THE PARASOL TEAM

Please contact the PARASOL team if you have any questions about the project, are interested in contributing data, or would like to participate in another way. You can use the form on this page or write to us directly.

Laura Mariani, MD, MSCE
Associate Professor of Medicine, University of Michigan
lmariani@med.umich.edu

Laurel Damashek
Executive Director, International Society of Glomerular Disease
ldamashek@is-gd.org

Interested in contributing data?

If you are interested in potentially sharing data with the PARASOL project, please include the following information:

• Name of data set
• Investigator name and contact information
• Database information, if available
  • Number of FSGS patients
  • Is the diagnosis biopsy-proven: Y/N
  • Data availability
    • Demographics: Y/N
    • Follow-up time:
    • Medications
    • Kidney failure events Y/N
      • Method of collection
• Other resources available

• Biospecimens: Y/N
• Genetic testing: Y/N
• Kidney biopsy slides or images: Y/N